As more children survive brain tumors, we learn more about the challenges they may face as they grow. Many survivors experience difficulties with independence, confidence, and leadership as they move into adolescence and adulthood. While research has helped us understand these challenges, there are still very few programs designed to help survivors and their families build these important life skills. 

The Children’s Brain Tumor Foundation (CBTF) is committed to supporting survivors and their families as they navigate life after treatment. Through programs that create leadership opportunities, teach independence skills, and build confidence, we help survivors grow while also strengthening the support systems around them. Independence and leadership mean different things to each person because everyone has unique experiences, abilities and goals. Through online and in-person programming, CBTF will assist families in strengthening leadership skills and improving independence in whatever area is most appropriate for each individual.

If you are interested in receiving services through the program, please complete the Leadership and Independence Program (LIP) form:

If you have additional questions, please contact Regina Karchner at rkarchner@cbtf.org.

The CBTF Young Professionals Group (YPG) provides resources and support for young adult brain tumor survivors as they prepare for college, explore career choices and navigate entering the workforce while managing the late effects of a pediatric brain tumor. 

Young adult brain tumor survivors face a higher unemployment rate than their peers, including other pediatric cancer survivors. This is partly because of the physical, cognitive, and emotional changes resulting from a brain tumor and its treatment. These may be visible or invisible. Communicating these changes and any accommodations which may be needed, as a result, are difficult. Frequently this group lacks peer support. YPG is often the bridge to employment and provides much-needed peer support.

Members of YPG are young professionals in their 20’s and 30’s currently holding full-time employment or seeking higher levels of education. All have experience with networking, resume writing, and interviewing, skills they are interested in sharing with young adults in our community. YPG may assist young adult survivors with college essays, mock interviews, review and edit resumes, and help them identify their strengths as they relate to career development. In addition, YPG members participate in local events and have the opportunity to develop and host fundraising events for friends and co-workers to support CBTF. 

Interested in learning more? Contact Stephanie Freeman at sfreeman@cbtf.org.