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A brain tumor diagnosis is not the end,
but where CBTF begins.

CBTF supports survivors,
parents and siblings because a brain tumor diagnosis impacts the entire family.

CBTF starts supporting you the day of diagnosis and is with you throughout the entire journey.

  • Annual Fund Goal: 11% 11%

New Cases of Pediatric Brain Tumors in the US in 2023

Adolescents and Young Adults Living with a Brain Tumor in the US

Online Family Groups and Programs CBTF held in 2023

Number of Families CBTF Helped in 2023

The Difference We Make

COMMUNITY

A pediatric brain or spinal cord tumor impacts the entire family. CBTF builds a community so no family member goes through the journey alone.

PROGRAMS

CBTF is the nation’s leader in family programs for those impacted by brain and spinal cord tumors. CBTF provides unique programs for survivors, caregivers and siblings throughout their journey.

RESOURCES

No family should feel like they are starting from square one. CBTF will link you to the resources you need throughout the entire brain and spinal cord tumor journey.

IMPACT

As founders of the Children’s Brain Tumor Network, we will never give up on working to find a cure and support those living with the impact of a brain or spinal cord tumor diagnosis and its treatment.

Latest News and Articles

From Diagnosis to Recovery: Gavin’s Inspiring Journey Through Childhood Cancer

From Diagnosis to Recovery: Gavin’s Inspiring Journey Through Childhood Cancer

In the heart of their hometown, the Prince family’s life took an unexpected turn when Gavin, just seven years old, began experiencing frequent vomiting episodes. What initially seemed like innocuous incidents quickly spiraled into a harrowing journey when a CT scan revealed a sizable mass nestled at the base of his brain. From that moment on, the family embarked on a tumultuous path marked by surgeries, chemotherapy, and countless hospital visits. Through it all, they found strength in each other, navigating the highs and lows with unwavering resilience. Their story is a testament to the power of familial love and the indomitable spirit in the face of adversity, offering a beacon of hope to all who walk a similar path.

read more
Finding Strength & Purpose Through Grief: How Running Became My Healing Journey

Finding Strength & Purpose Through Grief: How Running Became My Healing Journey

In the midst of despair and heartache, I found solace in running. After my son’s devastating battle with a brain tumor, it felt like my world had crumbled. But as I laced up my running shoes, something incredible happened. Running became my refuge, a place of hope, a defiant act against the impossible. It gave me control when everything else seemed uncontrollable. Every step was a tribute to my sweet boy, a reminder that life, despite its challenges, is a gift worth cherishing. I don’t run for medals; I run for Rohan, infusing profound meaning into every mile.

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MONTHLY GROUPS AND ACTIVITIES OVERVIEW See the calendar below for dates and to register
Bereaved Parent Group

CBTF offers a private Facebook community for bereaved families. This group offers a safe space where families can share stories, ask questions, make connections, and access educational grief resources. To participate, join our Facebook Group Grieving Parents of Children’s Brain Tumor Foundation. Contact Jessica Elder at jelder@cbtf.org for more information.

Bereaved Parent DIPG/DMG Group

In collaboration with the Marc Jr. Foundation, This group is for bereaved parents and caregivers of children who had a DIPG/DMG diagnosis. Please contact Jessica Elder at jelder@cbtf.org to join or for more information.

CBTF Cooks

This two-class workshop is for survivors and siblings of all ages. Chef Andrew Kovar will teach you how to create a healthy and delicious meal! Participants will receive a gift card for groceries. Contact Kayla at kgiacin@cbtf.org for more information.

College Chat

This group is for survivors preparing to enter or currently attending college. Topics vary from month to month and include organization, social life, accommodations and more. Dates for this workshop vary. Contact Regina at rkarchner@cbtf.org for more information.

Creative Matters Art Workshop

Each month CBTF hosts a fun, interactive, online art program for survivors and siblings of all ages. Participants receive an art kit with supplies for the project in the mail. Contact Kayla at kgiacin@cbtf.org for more information.

DIPG/DMG Parent Group

Receiving a diagnosis of DIPG or DMG is life altering for families who face a challenging diagnosis and treatment plan. CBTF & the Marc Jr. Foundation host a virtual support group for parents whose children have been diagnosed with DIPG or DMG. This one of a kind program is the only DIPG/DMG Parent Group run by a Clinical Social Worker. Find support from other parents on this journey. Contact Regina at rkarchner@cbtf.org for more information.

Fathers of Survivors Group

This group for fathers of brain tumor survivors gives them a place to connect over a shared experience which can be challenging to find during their journey. Dates for this group vary. Contact Stacia at swagner@cbtf.org for more information.

Mindfulness and Light Yoga

Sondra Albert leads a mindful movement class coordinating movement and breath to relax the body and reduce the mind’s constant chatter. This weekly group includes a series of gentle yoga poses with a focus on our breath as we move. Contact Beth at bjones@cbtf.org for more information.

Parents of Teen Survivors Group

The Parents of Teen Survivors Group meets monthly and is for parents and caregivers of teen brain tumor survivors ages 13-18. This group gives parents the opportunity to meet other parents in different stages of the brain tumor journey and share insights, resources and stories. Contact Stacia at swagner@cbtf.org for more information.

Parents of Young Adults Group

The Parents of Young Adult Survivor Group meets monthly and is for parents and caregivers of young adult brain tumor survivors ages 18 and older. It is a non judgmental space to share stories, issues and resources with others who understand. Contact Stacia at swagner@cbtf.org for more information.

Parents of Young Survivors Group

The Parents of Young Survivors Group is for parents and caregivers whose children are 15 and under at all stages of treatment and survivorship. These discussions give parents an opportunity to connect, share resources and stories with others who understand. Contact Regina at rkarchner@cbtf.org for more information.

Read to Dogs Program

CBTF’s Read to Dogs Program is for elementary and middle school age survivors and siblings of all reading abilities. Your child will be paired with a therapy dog and its person and will spend time reading out loud to an attentive, non-judgmental dog. It’s all about gaining confidence and having fun. Email shaferko@gmail.com to attend.

Stepping Forward Young Adult Survivor Chat

This is a monthly groups for young adult survivors (ages 18+). Our goal is to build friendships and provide meaningful tools and information for life during and after high school and beyond, including career advice, advocacy, and support, all while having fun! Contact Stephanie at sfreeman@cbtf.org for more information.

Teen Survivor Chat

Join other teenagers (ages 13-18) to make new friends, have fun, talk about life as a teenager, and share experiences and tips with others who’ve had a brain tumor. Contact Regina at rkarchner@cbtf.org for more information.

Young Adult Survivor Chat

Young Adult Chats is a weekly chat for survivors – run for survivors, by survivors! They include games, topic based discussion, and a great chance to connect with peers. Contact Tom at tha@cbtf.org for more information.

Young Survivor Chat

The Young Survivor Group is for survivors ages 8-15. These monthly discussions give young survivors an opportunity to connect, share resources and stories with others who understand. Contact Regina at rkarchner@cbtf.org for more information.

FEATURED EVENTS

Spring 2024 Scholarships

We are excited to announce the opening of our Spring 2024 Scholarships and Grants program at the Children's Brain Tumor Foundation. Designed for survivors and their siblings, this initiative aims to provide support for educational pursuits and personal growth endeavors. If you have courageously faced a brain tumor or have supported a sibling through their journey, we are here to empower you. Additionally, we are proud to collaborate with Jenna's Rainbow Foundation to offer the Moving Forward Grant as part of this program. Take advantage of this opportunity to apply for assistance on your path to success. Learn more about eligibility criteria and application details by clicking the button below!

2024 Just Us Retreat

Join us at the Children's Brain Tumor Foundation for a our annual retreat designed just for fathers and survivors! We're thrilled to extend a special invitation to our 2024 Just Us: Father & Survivor Retreat, taking place from May 31st to June 2nd at the serene Happiness is Camping in Hardwick, NJ. This retreat promises three days filled with comraderie, connection, and unforgettable memories. Together, we'll enjoy a range of activities, from archery, zip-lining, rock walls and more - all while bonding with other families who understand the unique journey of childhood brain tumor survivors. Come join us for a weekend of support, laughter, and the celebration of resilience. We can't wait to see you there!

 

Item of the Month

Winter is here and what better way to warm up than with an offical CBTF mug! Get yours today and help support our family programming!

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